The Journey Home

Today's adventure (sorry about the rotated pictures, it's late, we started early and my skilz are not mad) :

Leaving the hospital!

Not terribly thrilled about the car ride

Ahh, my swing.

We are all happy to be home!


No more hospital beds for Grayson.

Grayson is happy that he might be coming home this weekend. We are too!

New Hope

Grayson has been at St. Vincent's (now Peyton Manning's Children's Hospital at St. Vincent) for about two weeks now. He's been prodded and poked, scanned inside and out and had tubes and cameras shoved though every orafice. We've traveled down the roads of fear, panic, relief, hope, dashed hopes and frustration. But something has finally come back that all doctors involved agree is probably a big part of the problem.

A stomach biopsy came back showing elevated levels of some long complicated science-y word that point towards allergic reations occuring in is GI tract. So they are switching his formula (going directly into his intenstine via nasal tube) to a hypo-allergenic variety. They will check again in a few days to see if that makes a positive change.

He will likely still have to do a few weeks of therapy to help overcome his eating issues. He's spent so long associating eating with discomfort that he'll need help getting past that into some normal feeding behaviors. But they have a program that will come to our house for that.

He is looking very good -- up to 9lbs. 5oz., good color and wide, alert eyes, occasional smiles. There is a chance we could take him home this week (still on feeding tube, but still - home) until they are ready to recheck or while the results are out.

In other health news - I am sick as a dog. Sore throat. Phlegmy cough. Runny, congested sinuses, and as of last night, so nasty red-eye swelling and mucus secretion. So sadly I can't feel comfortable interacting too much witch Grayson, dispite my face mask and constant handwashing. Still it's nice to see him.

Rug pulled out

We're going to be pretty incommunicado for a while. Grayson started vomiting Saturday night so we rushed him to the emergency room. Being a holiday weekend, we didn't get to touch base with our family practitiioner until Tuesday, by which point we had both been vomiting and didn't want to go back to the hospital and expose the other kids in pediatrics. Since we'd been planning on a trip to Indianapolis for a more detailed workup, Grayson was transferred down to Saint Vincent Children's hospital Tuesday night. We followed Wednesday. We know that he has bad gastroesophogeal reflux, so basically it hurts him to eat. Today he's getting an MRI and a bone scan. He had a CT done yesterday. His poor little feet and hands are bruised from blood draws and he's being fed through a nasogastric tube. Unfortunately, he's vomiting up some of the high calorie formula if it isn't diluted with pedialyte. The neonatalogist/pediatric geneticist doesn't think that whatever the problem is is fatal, but we don't have a name for it yet.

Still, after almost four days without one, Grayson smiled for us before we had to come back home yesterday and he smiled twice for my mom, who's there until we can get back tomorrow.